God it has been a hot minute! I’m so sorry I’ve been so absent the past year or so, a lot has happened! Hopefully this post will make up for the last year.
The last time I checked in I was dealing with a possible endometriosis. I got that diagnosis and then it was revoked. And then I got a lupus diagnoses and that was revoked. Eventually after months of brutal testing, I was diagnosed with Lyme disease and a Co-infection Bartonella. Since that diagnosis in May 2019, I’ve been intensively treated for my infections that I’ve had for 7+ years. I’ve been on 8 diffent antibiotics, 2 intervenusly which required a picc line.
I’ve been sick since I was a little kid. I was told by every single doctor I saw that it was all in my head and I was crazy. Id seen maybe 50+ doctors before getting my diagnoses of Lyme. My symptoms had progressed so bad that I started to lose my memory, I lost my ability to write or read, and I became a shell of the person I once was.
After getting my diagnosis and starting treatment for Lyme, I started to have super weird symptoms. I was in so much pain in one specific place in my back and stomach, I was Peeing blood, and was becoming anemic form the amount of blood I was losing. After some more extensive testing, I was just recently diagnosed with a super rare disorder called nutcracker syndrome. Nutcracker syndrome refers to the compression of the left renal vein between the aorta and the superior mesenteric artery. It requires a major surgery to fix and half the time the surgery doesn’t work.
Right now I am not in school, my school decided it was in my best interest to be unenrolled to focus on my health. It sucks cause I won’t be graduating on time, most likely a year late 😦
So that’s been my life latley! Hopefull that’s cleared some things up. I’m gonna try and write some more and hopefully get a few posts up!